Author’s Night – The AIDS Generation: Stories of Survival and Resilience

Perry N. HalkitisPlease join us on Wednesday, March 19 at 6 pm to hear NYAM Fellow Perry N. Halkitis, PhD, MS, MPH, discuss his latest book, The AIDS Generation: Stories of Survival and Resilience. The book has just been named a finalist for a 2014 Lamda Literary Award in the biography/memoir category. To RSVP, e-mail Donna Fingerhut.

Dr. Halkitis had several motivations for writing this book, as he explains:

First, I wanted to create a historical document of the unique experiences that these men—the men of the AIDS Generation—lived through—people who lived through the darkest moments of the epidemic in the first two decades of AIDS. Second, I wanted to demonstrate the resilience of my generation of gay men and move away from research that is based on deficit models that are too often evident in the literature.  In fact, somehow the men of the AIDS Generation survived and thrived. It would be simple to say it was pure luck that they remained healthy long enough for the development of antiviral therapies. But I believe what I learned from these stories is that there is something greater at work here. These men were able to attend and care for the whole selves—social, biological, and emotional selves—which empowered them to get through to 1996, the turning point of the epidemic, and which is demonstrative of resilience and not deficit. Third, the way that the men of the AIDS Generation managed the disease helps to inform how we can work with all people who are living with HIV and other people living with challenging chronic diseases.

Dr. Halkitis is professor of applied psychology and public health and population health (Steinhardt School and Langone School of Medicine), director of the Center for Health, Identity, Behavior & Prevention Studies, and associate dean for academic affairs (Global Institute of Public Health) at New York University. He is also an affiliate of NYU’s Center for AIDS Research and Center for Drug Use and HIV Research. Dr. Halkitis has conducted HIV behavior research for the last 20 years, examining HIV in relation to other health problems.

Item of the Month: Posters from the Special Programme on AIDS, World Health Organization, 1987–1995

By Paul Theerman, Associate Director

The WHO Special Programme on AIDS was the first response of the United Nations to the pandemic that had gained world attention by the mid-1980s.1 The offspring of the first two international conferences on AIDS, in Atlanta in 1985 and in Paris the following year, the Programme was founded in February 1987. The Programme’s dynamic director, Jonathan M. Mann, had great hopes and grand plans for combating AIDS through a coordinated worldwide response—the only feasible way to control the virulent and widely spreading disease, he thought. From the beginning he also saw the AIDS outbreak as a focus for engaging global human rights issues. Under Mann, the WHO moved beyond its role of technical advisor to national governments, for it tried to take a directive role, actively engage non-governmental organizations, and promote non-discriminatory policies towards AIDS sufferers. Between 1987 and 1989, the Special Programme—which also came to be known as the Global Programme on AIDS—developed a comprehensive strategy for attacking the virus.


These two posters—one design in two languages—come from the heady days of the Programme’s beginning. Produced in 1987, these posters announced its slogan, “AIDS: A worldwide effort will stop it.” The posters’ design inadvertently reveals how difficult it was to talk about AIDS in the 1980s. AIDS seemed different from other diseases. First of all, it was a pandemic experienced in the west, perhaps the first such experience since the polio epidemic in the early 1950s, and before that, the influenza pandemic in 1918–19. With the rise of antibiotics and vaccination, widespread disease outbreaks in the developed world were no longer supposed to happen! As Dr. Gerald Friedland, a doctor on the front lines during the height of the pandemic, said at an event at Columbia University earlier this month, the disease caused the “inverse of the life cycle,” as it mostly impacted young people, leading to parents burying their children. “The only thing comparable was war.”

With AIDS, neither antibiotics nor vaccination worked, so epidemiologists were forced back to classic means of halting pandemics: stopping the means of transmission. Here also AIDS proved difficult. Those means—chiefly sexual contact and sharing needles—provoked strong reactions. Coupled with a long latency and an invariably fatal outcome after a horrific decline, AIDS did not have a simple profile.

The posters display that cultural unease. The UN commissioned noted New York graphic designer Milton Glaser, an internationally known logo and poster designer, with such readily recognizable designs as “I ♡ NY,” Esquire and New York magazines, and Sony, among many others. Certainly Glaser knows about the power of images to convey meaning. For these UN posters, he combined three elements, two hearts and a skull, to make a W—presumably to stand for “world” in the World Health Organization, and to reference the caption, “A worldwide effort will stop [AIDS].” But it’s not clear—and it doesn’t work in the Spanish version of the poster. Even more puzzling is the relationship of the hearts to the skulls. Is it cautionary: in the midst of love—erotic love, that is—lurks death? Is it hopeful: compassionate hearts will combine to crush AIDS? Is it both? Glaser produced a striking image, but he also produced an ambiguous one. By 1991, the red ribbon had been introduced as the predominant AIDS symbol, and it soon the supplanted the “heart-and-skull-W,” even at the UN itself.

The year that this poster came out proved to be the Programme’s high point. In 1988 a new director-general came to the World Health Organization. AIDS could not have two masters. By late 1989, the Programme’s efforts, strategies, and budget were brought up short, and Mann departed in 1990. The Programme limped along for another five years, until replaced by UNAIDS, the locus for United Nations action today. In the words of Mann’s successor,  Michael H. Merson: the Programme “was unable to muster the necessary political will . . . , and its effectiveness was compromised by . . . an increasing preference of wealthy governments for bilateral aid programs.”2 That seems where matters stand now, as we approach World AIDS Day, December 1. The story of the Special Programme on AIDS is a cautionary tale of the difficulties of grappling with a worldwide disease in a disjointed world.


1. Much of the history of the Special Programme on AIDS is found in two article by its founding director: Jonathan M. Mann, “The World Health Organization’s global strategy for the prevention and control of AIDS,” in AIDS—A Global Perspective [Special issue] Western Journal of Medicine 1987 Dec; 147:732–734; and Jonathan M. Mann and Kathleen Kay, “Confronting the pandemic: the World Health Organization’s Global Programme on AIDS, 1986–1989,” AIDS 1991; 5 (suppl. 2): S221–S229.

2.  Michael H. Merson, “The HIV–AIDS pandemic at 25—the global response,” New England Journal of Medicine 2006; 354:2414–2417 (June 8, 2006), quotation from page 2415.

Voices from the AIDS Epidemic

By Johanna Goldberg, Information Services Librarian

State of Florida Department of Health and Rehabilitative Services, 1987.

State of Florida Department of Health and Rehabilitative Services, 1987.

Today, health care professionals can use multiple tests to detect HIV infection. Where available, drugs therapies allow people to live with HIV for many years before developing AIDS. Of course, this was not always the case. In commemoration of World AIDS Day on December 1, we are revisiting some of the voices published in the early years of the epidemic.

In 1982, 14 doctors presented their front-line experiences at an international symposium, the proceedings of which were published in book form the following year. Their frustration with their inability to successfully treat their young patients rings out clearly.

“Thirteen of 42 patients in our series have already died. Nationwide, half of the patients have died.” Half of their patients with “Pneumicystis carinii pneumonia (PCP) , the most common infection,” responded to the administered drug . “However, excluding three who are still being treated, only two patients who had PCP are presently alive, even though six recovered from their initial infection.” In the ten patients with Cytomegalovirus (CMV) infection, eight died. “Only one, a 22-year-old man with CMV pneumonia, has recovered.” As the authors go on to say, “treatment remains a knotty problem.”

At another symposium, also published in book form, Dr. Kevin M. Cahill, the senior member of the New York City Board of Health, applauded the efforts of individual doctors and nurses, in addition to the “superb work” of the Gay Men’s Health Crisis.  But he chastised the inaction of the “organized medical community.”

“When a fatal infection had struck down veterans attending an American Legion convention, health professionals across the country joined in the search for a solution. When women using tampons became ill with toxic shock syndrome, medical societies and research centers immediately focused their enormous talents on that problem. But when the victims were drug addicts and poor Haitian refugees and homosexual men, their plight did not, somehow, seem as significant to those expected to speak for the health professions. No major research programs were announced, and until it became clear that the disease could spread to the general population through blood transfusions, organized medicine seemed part of the conspiracy of silence.”

Where are we today? Even with so much knowledge about prevention, the CDC estimates that 50,000 people in the United States become newly infected with HIV each year; about 33,000 people receive AIDS diagnoses. In the United States, HIV incidence in people aged 13-29 rose 21 percent between 2006 and 2009.

Prevention education remains essential. Visit the CDC’s Act Against AIDS page or World AIDS Day’s website to find out more about current prevention and testing measures.

For a year-by-year timeline of the HIV/AIDS epidemic in the United States, visit

Cahill, K. M. (1983). The AIDS epidemic.  New York: St. Martin’s Press.

Centers for Disease Control and Prevention. (2012). Basic Statistics. Retrieved November 28, 2012, from

Gold, J. W. M., Armstrong, D., Sears, C. L., Henry, S., Donnelly, H., Brown, A. E., …Wong, B.(1983). Acquired Immunodeficiency Syndrome: Infection and Neoplasia in Homosexual Men and Intravenous Drug Addicts. In C. S. F. Easmon & H. Gaya (Eds.), Second international symposium on infections in the immunocompromised host (pp. 105–113). London: Academic Press.